Waitlist Zero
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Waitlist Zero is an advocacy group dedicated to promoting living kidney transplantation.[1] Waitlist Zero launched in September 2014, when it obtained its 501(c),[2] with Josh Morrison and Thomas Kelly as co-founders and current executive directors, along with Stephen Rice as its project director.[3]
Programs
[edit]Policy and donor advocacy
[edit]Waitlist Zero's primary goal is the support of policies which expand kidney donation with both federal and state campaigns.[4]
At a federal level, Waitlist Zero coalition with the Health Resources and Services Administration (HRSA) in 2015 aims to allow and allocate grants directed to rise living kidney donation,[5] and to implement system-level changes at hospitals regarding donation practices.[4][6]
State-level (mainly in New York) proposed legislations include covering the financial costs of the operation and guaranteeing donor health insurance.[7]
Public awareness and transplant education
[edit]Non-directed donor education initiatives have also been set in motion, in order to raise awareness about kidney donation, increase the attractiveness of non-directed donations, debunk common misconceptions about living organ transplantation and mobilize donors as constituency group for the organisation.[2][8]
In January 2015, a social media strategy has also been implemented via Facebook posts, Twitter hashtags and a petition on Change.org asking support from the HRSA.[9]
- To increase the donor-candidate lack of education.
- To spread its benefits and to debunk common misconceptions about living organ donation.
Funding
[edit]Waitlist Zero received its major funding in September 2014 of $50,000 as a planning grant,[10] and a year later, in August 2015, $200,000, for general support.[11] Both were granted by the Open Philanthropy Project. They also had received grants from fundraising events and a private donation by Novartis of $35,000.[12]
While a total of $135,000 is expected to be received by the end of 2016, fundraising has since been deprioritized by the board in order to focus on its main goals and values.[12]
Partners
[edit]Waitlist Zero is part of the Coalition to Promote Living Kidney Donation, a group made of fourteen other non-profit organisations[13] advocating for policies to expand living organ donation.[14]
References
[edit]- ^ Kelly, Michael; Morrison, Josh. "About - WaitListZero". Open Philanthropy Project. Retrieved 14 August 2016.
- ^ a b Berger, Alexander; Kelly, Thomas; Morrison, Josh. "A conversation with Waitlist Zero,January 28, 2015" (PDF). GiveWell. Retrieved 14 August 2016.
- ^ "Our Team". WaitList Zero. Retrieved 15 August 2016.
- ^ a b "Our Plan". WaitList Zero. Retrieved 15 August 2016.
- ^ "HRSA Living Donation Coalition Statement of Principles" (PDF). WaitList Zero. Retrieved 15 August 2016.
- ^ "Policy and Donor Advocacy". WaitList Zero. Retrieved 15 August 2016.
- ^ "Policy Strategy and Campaigns". WaitList Zero. Retrieved 15 August 2016.
- ^ "The Kidney Crisis". WaitList Zero. Retrieved 15 August 2016.
- ^ "Social Media Strategy Memorandum" (PDF). GiveWell. Retrieved 15 August 2016.
- ^ "Waitlist Zero — Planning Grant". Open Philanthropy Project. June 2015. Retrieved 15 August 2016.
- ^ "WaitList Zero — General Support". Open Philanthropy Project. Retrieved 15 August 2016.
- ^ a b Morrison, Josh; Berger, Alexander (April 25, 2016). "A conversation with Josh Morrison, April 25, 2016" (PDF). Open Philanthropy Project. Retrieved 14 August 2016.
- ^ "Our Members". Coalition to Promote Living Kidney Donation. Retrieved 15 August 2016.
- ^ "Our Goals". Coalition to Promote Living Kidney Donation. Retrieved 15 August 2016.